Children and teens with neurofibromatosis type 1 (NF1) can struggle with everyday independence; learning difficulties affect approximately 50-60% of people with NF1. Challenges with planning, movement, and sensory processing can make daily routines and participation at home, school, and play harder.

The solution

We are exploring several concepts. A device that guides children through routines one step at a time; a portable gait assessment kit for clinic visits; and an iPad game for practicing everyday life skills. Our goal is to develop practical, affordable tool that support independence and reflect the needs of children, families, and clinicians.